A search on "paraplegia" in the "Expert Centres" tab will give a result of clinics/hospitals/organisations which have specific expertise in HSP/FSP
Here are some links to other pages with further details on HSP. These pages do tend to get linked from on other HSP pages, so I tend to regard them as containing something unique.
This site perhaps out to be listed in a "communities" page, and provides another route for people to connect up with others with the condition.
Finally, as part of my "getting side-tracked" functionality, I was very interested to read here that HSP can skip a generation: