Closed group on Facebook. This is a really good group which keeps posting relevant news and information about HSBC.
This post just gives links to some of the information posted recently. I've only posted links to general stories rather than specific HSP studies. Big thanks to Rita Handrich for setting the group up and posting such good stuff.
This report shows that regular stretching boosts cardiovascular fitness if you can't undertake exercise.
This article describes using VR glasses to identify if people have a neurodegenerative disease (like HSP)
This report talks about chronic pain being it's own neurodegenerative disease, noting that there is often no identifiable source.
These are some non medicinal techniques you can use to control pain
This site reports a touchless catheter, which might be useful for some:
This article talks about care giving, but you need to subscribe to see the full thing.
This report indicates a link between weight and cognitive function - the higher your BMI, the higher your inflammation, leading to cognitive decline. Key message is maintain your weight to keep your brain on good form.