Symptoms Timeline

Symptoms

This table shows my symptoms changing over time, for those that like to see these things. Last update 1st Jan 2024.

Columns are:
Year: Which year this is
Symptoms: a brief summary of the years symptoms/change
Appoints: number of HSP appointments in the year
Stretches: number of and mins duration of stretches per day
Antis pasticity: dose of antispasticity medication, per day
Bladder: dose of bladder medication, per day

Year

Symptoms
Appoints
Stretches
Anti
spasticity
Bladder

1970's

None

-

-

-

-

1980's

Difficulty sitting cross legged & in a canoe

-

-

-

-

1990's

Tripping on flat surfaces

-

-

-

-

2000's

Posture: knees slightly bent. Bladder frequency

-

-

-

-

2008

-

1

-

-

-

2009

-

3

-

-

-

2010

Some tense leg muscles, Neurologist: Mild spasticity

1

-

-

-

2011

Some pins and needles, Foot starting to drag on floor

0

-

-

-

2012

Sitting/standing issues, More rapid shoe wear

0

-

-

-

2013

Stiffer legs, bowel and bladder urgency issues start

0

-

-

-

2014

Use of bannisters, mild depression, mild arm spasticity

5

-

-

1.4mg

2015

Getting on/off bike seat becomes more difficult

9

2*3-8

-

1.4mg

2016

Legs heavier, knees together.

8

2*5-11

-

1.4mg>4mg

2017

Walking slower, distance limited

5

2*5-11

-

4mg

2018

Some fatigue, walking slower, distance limited

2

2*5-11

-

4mg

2019

Similar - bladder, driving, stairs, sleep.

0

1-2*5-11

-

4mg

2020

Walking speed & distance, bladder, bowel

2

1*8-14

-

4>2*2mg

2021

Fatigue! - muscle strength

3

1*15-20

-

2*2>2*2.5mg

2022

Depression, fatigue, muscle strength

4

1*15-20

-

2*2.5mg

2023

Walking - start baclofen. Fatigue, depression.

4

1*15-20

1*10mg

2*2.5mg


My first anti spasticity medication is baclofen. My bladder medication changed in 2016, 2020 and 2021. During 2019 I dropped going from two sets of daily stretches to one set per day.

This table has previously reported Pilates, which I do 1hr per week since 2010 and insoles which I have worn all day 2015-2019 and outdoors since 2020.  

Appointments

This table shows my HSP appointments.

The other details column gives details of the "other" appointments which I have had. A dash means that all appointments are covered by the other columns.

GP

Neuro

Physio

Orthotic

Other

Other Details

2008

1

2009

3

Genetics

2010

1

2011

2012

2013

2014

2

1

2

Stress, Bowel

2015

0

0

5

3

1

Bowel

2016

1

1

3

1

2

Bowel, Joint Physio/Orthotic

2017

1

0

2

0

2

Bladder, MRI

2018

1

1

0

0

0

-

2019

0

0

0

0

0

-

2020

1

1

0

0

0

-

2021

1

1

1

0

0

-

2022

0

1

0

0

3

GP - AntiD

2023

1

1

0

0

2

GP - Baclofen, Sign off work


Health Data

This table shows a summary of some of the other health data which I track, given quarterly for the last two years and annual before then. Each column is average over the period except for bike distance which shows the total distance.

Steps
(k/day)

Active

(Min/day)

Sleep

 (h:m/day)

Bike Dist

(total km)

Bike Speed

(km/h)

Alcohol

 (unit/wk)

Weight

(kg)

2017

12.4

102

06:12

4267

18.2

12.7

86.0

2018

11.0

106

06:06

4013

17.2

12.8

86.7

2019

13.5

120

05:50

4711

18.5

23.3

88.2

2020

13.4

131

05:55

6081

17.8

16.6

85.5

2021

10.6

101

06:05

3794

17.5

13.9

84.9

2022 Q1

8.5

86

06:17

397

16.5

4.9

90.2

2022 Q2

8.4

81

06:01

243

15.4

13.1

93.6

2022 Q3

9.9

50

06:20

181

15.8

14.8

96.0

2022 Q4

7.7

29

06:20

28

15.6

13.6

94.6

2023 Q1

9.6

29

06:20

0

-

6.3

94.3

2023 Q2

9.8

35

05:55

0

-

17.6

95.7

2023 Q3

9.0

29

06:04

0

-

19.3

96.3

2023 Q4

8.7

30

06:13

0

-

18.6

94.6


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