Symptoms Timeline

This is a symptoms timeline so that people can monitor how things are changing for me.

Symptoms and Treatments Table:
-Year: the year in question
-Symptoms: highlights of changes to my symptoms
-Appoints: The number of appointments I've had in connection with HSP
-Pilates: How long I do Pilates each week
-Stretches: How many sessions of stretches I do each day, and their length in minutes
-Bladder: My dosage of Detrusitol/Neditol per day
-Insoles: How long I wear my insoles for

Year Symptoms Appoints Pilates Stretches Bladder Insoles
1970's None - - - - -
1980's Difficulty sitting cross legged & in a canoe - - - - -
1990's Tripping on flat surfaces - - - - -
2000's Posture: knees slightly bent. Bladder frequency - - - - -
2008 - 1 - - - -
2009 - 3 - - - -
2010 Some tense leg muscles, Neurologist: Mild spasticity 1 1hr - - -
2011 Some pins and needles, Foot starting to drag on floor 0 1hr - - -
2012 Sitting/standing issues, More rapid shoe wear 0 1hr - - -
2013 Stiffer legs, bowel and bladder urgency issues start 0 1hr - - -
2014 Use of bannisters, mild depression, mild arm spasticity 5 1hr - 1.4mg -
2015 Getting on/off bike seat becomes more difficult 9 1hr 2*5-10 1.4mg All day
2016 Legs heavier, knees together 7 1hr 2*10-15 1.4mg All day

Symptoms Table:
These are from Patients Like Me, where I have tracked data.
-Year: the year in question

-Fatigue: Most frequent fatigue rating.
-Pain: Most frequent pain rating.
The scale is: None, Mild, Moderate, Severe. Where there is a "+" or a "-" after the rating it means some time I score better ("+") or worse ("-") than the most frequent rating.

-Social QOL: Most frequent social quality of life rating
-Mental QOL: Most frequent mental quality of life rating
-Physical QOL: Most frequent physical quality of life rating
The scale is: Best, Good, Bad, Worst. Where there is a "+" or a "-" after the rating it means some time I score better ("+") or worse ("-") than the most frequent rating.

 Year Fatigue Pain Social QOL Mental QOL Physical QOL
2014 Mild- None Best- Good+ Best
2015 Mild+ None Best Best- Best
2016 Mild+ None Best Best Best

These are the details of my appointments:
GP Neuro Physio Orthotic Other Other Details
2008 1
2009 3 Genetics
2010 1
2011
2012
2013
2014 2 1 2 Stress, Bowel
2015 0 0 5 3 1 Bowel
2016 1 1 3 1 2 Bowel, Joint Physio/Orthotic


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